Showing posts with label pregnancy. Show all posts
Showing posts with label pregnancy. Show all posts

September 30, 2013

Pregnancy and Autism - What It's Like

I wrote pretty much every day of my pregnancy with the Little Man in my (shared online) personal journal. People commented that it was extremely detailed - I became extremely introspective during my pregnancy and I realize now, looking back, that I was experiencing sensory overload, pretty much 24/7. Which is kind of understandable when having someone in your space 24/7 for 41.4 weeks. Not only that but the Little Man was really good at making his presence known - he exhibited what some believe to be an early sign of Autism, which is increased fetal movement. It felt like I had Animal from the Muppet Show playing drums in my uterus every morning at around 4am. Other times too, but 4am was one of his favourite times, unfortunately. I actually had to get up and walk around the house, trying to rock him back to sleep. He would quiet down and then I would lie down again and he would start up again. I was pretty much always tired while pregnant.


Kelly J Au from OneQuarterMama.ca while pregnant with the Little Man
Me pregnant with the Little Man
Anyway, back to other issues, some of which I believe are experienced by NTs, but maybe it's a bit more sensitive to those on the spectrum. If you're an Autistic who has been pregnant, feel free to share your experiences in the comments for the benefit of others.

1) My skin felt itchy from the inside.

2) I did not want to be touched by anyone. I accepted hugs with express permission, but they had to be firm ones.

3) My personal space perimeter grew by a few extra feet.

4) I wanted complete silence, pretty much all the time. It took me a long time to crawl out of this state, which I wrote about here.

5) Despite my wheat intolerance, I found myself more able to digest more things, including citrus. It was as if my IBS/digestive issues disappeared.

6) Like I said, I became very introspective and very withdrawn. I overanalyzed every emotion and pretty much wanted to be alone in a cave in the forest.

7) It sounds contradictory, but I also became hypersexual. Every experience felt more intense.

I asked on the woman's Aspie group I'm on and I can't say the majority of them had these same issues to the same extent, so I think a lot of these were more caused by my SPD than my Autism.

On the plus side, many of us did NOT have horrible morning sickness. Maybe we're less likely to actually vomit?

The main point I want to make is if you're Autisic and concerned about being pregnant, you will make it through ok.

When it comes to labour, I'd say the vast majority of us (the Autistic women I spoke to) were very calm and quiet during our labours. This, unfortunately, meant nurses did not take our need for pain relief seriously. Many underestimated our stage of labour. This does not mean if I have to do labour again that I will put on an act in order to get some help, nor do I think any woman should have to do that. We need to be believed at our word - all women, not just Autistic women. Just because we are quiet, does not mean we are not in great pain. Some of us were lucky to have an advocate with us (an understanding partner) who were able to convince medical staff that we really are in pain. But that's not the case for everyone and that doesn't make any sense really. What needs to happen is the woman always needs to be respected and greater understanding for the Autistic experience needs to happen. 

July 10, 2013

Survey

Well, this makes is pretty obvious what kind of business I'm thinking of going into, but I don't mind. I just need info, so if you could take a few minutes and answer this short survey, I would really appreciate it!

http://www.surveymonkey.com/s/V2VX6F6

Also, please share it with all your friends who have little ones! Thanks!

May 01, 2013

Why We Didn't Get Tested

While the special needs of our sons are different, we share a lot in common with the author of this article concerning why we chose NOT to have prenatal genetic testing.

I'm not sure I've written much about our choices publicly before. At the time, the emotions were very raw and I was tired of being judged. But it's been a few years now, so here goes!

I was pretty distraught after our first miscarriage. I tried to get someone to do some tests, but no one would bother after just one miscarriage. By the time we had three, I finally got a doctor on our side - we ended up at a private clinic and had genetic testing done. We were sent to a genetic counselor to break the news - we both had genetic abnormalities and the likelihood of us having a live birth was around 25%. With that also carried a chance of a developmental delay (unspecified) of around 5-10%.

I got that news right before my 28th birthday. I was pretty upset. I wasn't sure at that point that I wanted to try again. Overwhelmed with the news and caring for my ailing father at the same time, I booked a two-week solo trip to England and Morocco and decided I would deal with life when I returned.

I came back with a new perspective. I got pregnant a month later.

When that embryo seemed to be sticking, we were offered all sorts of testing. At first it was gentle prodding, so that we could make an "educated" decision to terminate early. One doctor refused to take me as a patient because I was refusing an amnio. I left that office crying, feeling like I was being accused of carrying a genetic mutant and not a child.

I had to explain over and over what a privilege I felt it was to be carrying any child at all and I truly did not care what was potentially "wrong" with it. I had tried long enough to get pregnant, I wasn't about to throw it away! My belief is that all children come with challenges; no child is perfect, no child grows up and does EXACTLY what their parents want them to do. Such is life. If you cannot accept imperfection in humans, then maybe you should not have children.

We still had a lot of testing done in the form of ultrasounds, but not for the purpose of abortion. They searched high and low for any organ malformations. They kept their eyes on the brain, the kidneys and heart. They found nothing wrong.

In the end the embryo that stuck around became Little Man and he may have some issues, but he's damn near perfect to me. I believe he's been sent to us for a purpose - we all have a purpose - and he makes me a better person.

February 04, 2013

Baby Bumps


Can we all stop calling pregnant bellies "baby bumps"? One, it is not a bump, it's just pregnancy. Two, it's not a baby in there, it's a fetus! A baby is not a baby until it comes out! Call it a "Fetus belly," I don't care, but it's not a freakin' BUMP, nor a lovely lady hump. Com'on people!

If that's not bad enough, now poor Kate Middleton has a "royal bump." Oh, you make me sick.
So I'm reading this article about Kate having a walk with her royal bump (look, she's not taking a walk with it, it's simply within her body and it's a pretty normal thing for female humans to do) and when referring to a photo of her it says:

"clutched her hands protectively over her burgeoning belly"


kate onequartermama
If that is a burgeoning belly then God help us all. I don't see any buds. Hell, I don't even see any roots! And clutching protectively? Really? Where else is she supposed to put her hands while posing? Oh, I know, one on her hip and one behind her head because that's how all women are supposed to pose, duh!

Do you know what I call men who write stupid articles like this? A Royal Pain in the Ass.

July 28, 2011

Group B Strep Awareness Month

July is almost over, but it's Group B Strep Awareness Month.

I'm sure you were probably tested before giving birth and didn't think anything of it. I know I didn't. I was told if I tested positive, I would be given antibiotics during labour. I figured it's probably not a big deal. I was negative anyway, but I never realized until I read this article how horrible and deadly it can be - even if you test negative.

Click on the link to read a story of one woman's loss and tremendous courage to continue to educate others.

Pass it on to all the expectant moms you know.

June 04, 2011

More Adoption Set Backs

In news of annoying set backs, we found out we can't put an adopted/fostered child in the same room as a biological child. So we'd have to clear out The Little Man's old room, which would mean we'd have to pay for storage again or just move. Not that it matters anyway because I'm disqualified from a child this year now because my father just died. We have to wait 1 year after a "traumatic event" to even be considered. I miss my dad, but I'm not traumatised. We've been trying to adopt since 2008 - this has nothing to do with my dad and never has. So I'm a little annoyed. I'm just starting to feel like they'll just come up with *anything* to slow the process down.
It's looking more and more like I'll have to get knocked up again if we want a child in any reasonable amount of time. Unless someone has a better idea? I guess if I were rich I could just pick one up in Malawi or something :s

QC is paying for three cycles of IVF now, so we could get PGD and while I could still miscarry, at least we have some assurance it's not a genetic mutant. But then Clomid has been linked to birth defects now, so are we really better off? Not to even mention all the weirdness that stuff would do to *my* body. Blargh!

Sometimes I wonder why some women are like the Duggars with like 20 kids and some women have so much trouble.

Ack, my friend just posted pics of her new baby and I have a new niece or nephew due any second now. My uterus is talking to me....

April 04, 2010

Essentials for a Happy Pregnancy

I wrote this August 2009, before I gave birth.

Now that this crazy ride is nearly over, I've compiled a list of things that helped me get through it. Feel free to add more if you think there's something missing.

-There is actually something to be said for setting up the nursery *before* even getting pregnant. I always found this odd, but I do see some logic in it. This way, the pregnant-to-be person can actually help with painting, lifting heavy nursery furniture and putting it all together. I've also always found it easier to accumulate things over time (and find good deals) than to go on a giant baby shopping spree. But YMMV.
I was not able to help at all with putting together the change table, and that bothered me as I'm actually more handy than my husband is, but well, in the end we have the same result.

Non-herbal remedies:
-Tums (for heartburn and indigestion. Rolaids are verboten. You can only take Tums and hey, they have calcium!)
-Gas-X (I've never had such bad gas pain as my first trimester. I seriously would have exploded without it.)
-Dicletin (by prescription only) For me, it was a godsend to keep the nausea away and function without suddenly hurling on people.
-Tylenol if you get a fever or have pain. There are literally no other options.
-Anusol suppositories or cream for hemorrhoids. Store brands are just as effective, but the cream smells like crap. Though considering where it's going, I guess it doesn't matter.

Herbal or vitamin remedies:
-Ginger! Ginger in all it's forms, roots, tea, candies, whatever. Just eat/drink it. Effective for keeping away the indigestion and nausea of the first trimester; I ate so much ginger, I should have bought stock in it.
-Raspberry leaf tea. Also helps with nausea, but try not to drink too much in the first trimester (some say it causes miscarriage. I have no clue). I say err on the side of caution and drink it during the second and third.
-Vitamin B6 - Dicletin is just B6 with an antihistamine added. If you can get away with just extra B6 (in addition to your pre-natal vitamin) go right ahead. If I knew I was going somewhere important in the day, I took Dicletin. If I just stayed home, I just took the B6. So it gives you options.
-A handful of almonds before bed is supposed to help stop acid reflux. No clue since I haven't had that problem. You can also try milk, crackers, or in my friend's case, Seven 11 Slushies were the only thing that worked for her. Find your remedy and stick to it!
-Witch hazel to soothe hemorrhoids.
-Almond oil to prevent stretch marks (or Bio-Oil if you don't like greasy). Almond oil is also good for perineal massage.


-I would not have survived without my Snoogle. It's the best invention in the world!
-Belly wedges. I have four different ones, but stick mostly to the softest one. Depends on your belly. Great for preventing round ligament pain.
-If you need a sleeping pill, Unisom is the only safe one to take. You cannot take melatonin. If you're like me though, you'll be so exhausted you won't need any help. I did have some sleepless nights, but not enough to make me want to drug myself.
-One of those bedside rails for elderly people. I took my dad's. It rocks! Not sure how I'd get out of bed without it.


-A person to help lift, carry and reach things you are unable to. (You're not supposed to carry more than 25lbs in each arm.) Work within your limits, you don't want to contract the uterus, so no sit-ups either.
-Something to put your feet up on to prevent swelling.
-Panty liners to catch the constant flow of cleaning goop coming out of your vagina. Could be TMI, but trust me, you will soak through your undies and pants without one. Seriously. You cannot use tampons/cups while pregnant.
-A patient person to run errands for you (like get you food) when you are unable to.
-Your fave take-out places on speed dial because cooking becomes a horrible chore some days.
-Have some washable nursing pads available early. If you're like me and start leaking at 20 weeks, they're nice to have.
-Rubber bands - attach them through the loop and hook of your pre-pregnancy pants and keep wearing them!
-Blinders and earplugs for when you go out and get stopped by strangers in the street who insist on telling you completely ridiculous things. Most notably, those who think it's their duty to quickly tell you how painful and horrible labour is.
-Get used to people staring at you constantly, no matter what you're doing.
-If your bathtub/shower does not have a handle/grip inside, consider getting one of those suction cup ones, along with a non-slip mat. If my bath could fit it, I'd be using my dad's old shower chair, too.
-A handheld mirror to see your vulva, if you're so inclined. I haven't seen mine in months and I miss it.
-If you like to shave, towards the end you'll need someone else to trim and shave your pubic region or legs. On the other hand, you may also find you simply don't care anymore.
-Condoms for sex if you find the prostaglandins in sperm are causing too many contractions.
-Find a good deodorant because not only does your odor change, but you sweat more.

And lots of patience because you'll need it!