Showing posts with label autistic mom. Show all posts
Showing posts with label autistic mom. Show all posts

September 23, 2013

How To Parent Like An Autistic Parent

I see some benefits to being an Autistic mom, so I'm sharing my amazing wisdom. lol. You can't change your brain, but you can change your behaviour.
Wanna parent like me? Give these ideas a try:

1) Have a kid for the right reasons

A child is not an extension of yourself. A child is not there to love you, to complete you, to help you work out your childhood issues, to care for you when you get old or to be your friend. Have a kid because you like the idea of raising a new person to be the best person they can be, without any tethers or expectations on your end. Your job is to help this being reach its full potential, whatever that is, and to love them like there's no tomorrow. When it comes time, let them go be themselves on their own, but leave the door of love and support open when they need it. When you are old and frail, you may be lucky enough to have them care for you well, but their only real job, should be to be happy, well-adjusted adults with all the tools they need to reach their destiny. Your ego has no part in it.
If you're looking for something to love you, spoil and dress up, get a dog.

2) Have some empathy

Neurotypicals sure talk big talk about having empathy, but can be really lousy at it! It should be noted that Autistics don't lack all types of empathy (and yes, there is more than one type!), just cognitive empathy. In other words, we can't read minds, so we can't predict what people will do next. It doesn't help that a lot of people lie and say one thing, then do another. It gets tiring and confusing trying to figure y'all out! Anyway, we Autistics have a whole lot of affective and compassionate empathy, maybe too much. When someone says, "I feel your pain" I can really feel other people's pain. It can be hard to shake off someone else's strong emotions. You should have seen me in bereavement group, bawling for everyone else's losses like they were my own.

Anyway, grow more compassionate empathy for your child. I find NT people often project feelings or underhanded motivations onto their kids that aren't there. Children can be manipulative underhanded little snots now and then (and guess who they learn it from if that's the case....) but the vast majority of the time, their needs and wants are very simple, guided by simple thought processes. They are not actively trying to annoy you. They simply don't know of a better way to get their needs met, especially if you're in the habit of ignoring them in the first place.

Infants/babies are even more innocent. They are not up screaming at night because they hate your guts and want to see you suffer. They are only trying to communicate. And if you have a bit more empathy and see things from their point of view a bit more, you'll have less screaming and frustration in the first place.

I don't understand why people have babies and then seem to want to spend so much time away from them. The child is born helpless and they take it and put it alone in a crib, far from the scent, sound and touch of the mommy it was just with for the last 9 months. Doesn't that sound traumatizing? Imagine being plopped into this bright, loud, scary world - no one speaks your language and the only familiar thing to you keeps moving away from you, sticking you in a stroller and pushing you around? Actually, being in a bright, loud, scary world is often how Autistics see it, so maybe that's why I can empathize with babies!
I or my husband, held our son pretty much constantly as a baby because I 1) didn't want him far from me, and 2) didn't want him to feel abandoned and confused. He still cried a lot, but he did it in someone's loving arms, never alone.

My point with all this is from the beginning, trust your baby just wants to be with you and be understood, and don't read anything else into the relationship.

3) Listen for "I Love You" in other ways

Spend more time saying, "I love you" to your child and really showing it, and less time waiting for, prompting, forcing or expecting them to say it. If they want to say the words, at some point they will say them. But keep your eyes open, because they say it hundreds of times a day without you even noticing! When they are in unfamiliar territory and they cling to your leg, that's "I love you." When they're not sure of something and they look over at you to see your facial expression, that's "I love you." When they shove food in your face, that's "I love you." When they parrot back every single thing you say, that's "I love you." When they cry when you pick them up from daycare, that's a really big "I love you." When you sing and for one brief moment they stop, or sway or turn towards your voice, that's "I love you." I could go on, but there are so many ways.
Trust that your child loves you and does so all the time. Again, it's not about your ego. Hearing the words should not make or break you. Instead of forcing your language on them, learn theirs. Now that's love.

4) Respect their bodily autonomy

This is getting longer than I thought, so I might do a part two, if anyone is interested. Let me know in the comments!

September 16, 2013

Autism Mom Vs. Autistic Mom

I've been doing a whole lot of reading lately and a lot of it is written by Autistic self-advocates. Some of it isn't really a revelation to me, being Autistic myself and all - and even without officially knowing my diagnosis until recently, I was already sensitive to certain things and had my own ideas about how I would raise my child. But other stuff I hadn't thought about - the language I was using and how.

I also have a special viewpoint (thought not unique seeing how Autism often runs in families) being both an Autistic mom and so-called Autism Mom (I'm not really sure about that term, so I'll have to think about it a bit more). But it's already easy to see very striking opposing viewpoints.

On the Autistic adult side, they write with a lot of anger, and for good reason, but it's still very raw and caustic (and triggering and hard to read at times). A lot of us have been abused by our own parents for being different...or just because our parents were abusive a-holes. A lot of us have been abused/bullied by peers, teachers, educators, counsellors - people trusted with our care. A lot of us have been harassed/bullied/excluded by society at large. So it's understandable there's a lot of anger. I get that. I've lived that. But I don't tend to use this particular blog to air that stuff. A lot of that stuff has been worked out through copious amounts of therapy and lots of writing and crying. That's not what this blog is for.

On the other side of the spectrum, no pun intended, are moms and dads who are neurotypical, but have Autistic kids. Some are doing a great job (and they should be acknowledged) and others are a complete mess, perpetuating abuse. I have issues with people looking for "cures" (there is no cure for Autism, unless you have a brain transplant and those aren't successful). There is no prevention other than abort your child or kill it. Or, hey, here's a crazy idea - if you want a "perfect" kid, you probably are having kids for the wrong reason and shouldn't.

I've written many times about acceptance. I stand in stark contrast to the "Autism Moms" for my refusal to do ABA or other "behaviour modification" training/enforcing/experimental abuse on my son. I don't force him to look at me; no one listens with their eyes, his ears work just fine. He is not broken. He is not to be "cured" because then I wouldn't have my son. But there's a lot of outside pressure because there's a whole lot of money to be made with these private companies who provide these services and prey on scared parents.

I get disgusted with NT parents saying things like (real quote), "I'm so happy I had a second child. She turned out fine and it was proof for me that my body is capable of making something normal." Fer real, girl?! And you posted that publicly for everyone to see and you have no shame? Shit like that just amazes me.

So I straddle these two worlds and it can be awkward. Over time, as I get more comfortable in my own skin concerning my new diagnosis, I think it will be easier to just be me.

All I really want for my son is to be happy. What I also really want is for him to have it easier than I did. I hope the world has changed a lot since I was a kid, but I'm still aware it hasn't changed enough yet. I want him to work on his weaknesses within reason, and not force him into something he's not. I want him to work hard on his talents and be the best he can be at whatever he's best at. I'm not so concerned on the how, or the when.