I Don't Like Love - Sensory Issues Explained

TRIGGER WARNING: People touching others without express consent

Every once and a while I get reminded of a date I had with Hubby, very early in our relationship. We decided to meet at a restaurant and I went to find a seat to wait for him. I didn't know, but he was close behind me, so he came up from behind and touched my hair. My reflex was to snap my arm back, with my hand in a fist, and whack whoever touched me without permission. I ended up punching him square in the face and giving him a bloody nose.

Little did he know, I hated having my head or hair touched. Little did he know, I hate people touching me from behind. I hate people touching me without permission. I hate strangers touching me. I use the word, "hate" because it really is a strong aversion.

After the bleeding stopped, and I explained my issues, we still had a nice dinner. And evidently, he never tried to sneak up from behind me again. But it was nothing personal.
My quick reflexes would be very helpful if I were actually being attacked, but they are a bit of a mood killer otherwise, I must say. Still, I'll explain a little bit about why I react that way and maybe you can get an idea how it feels.

I should remind people that I have Sensory Processing Disorder (SPD) and not just autism, so that could explain my extra sensitivity. Also, my sensory issues have changed since childhood, meaning I'm not quite as sensitive as I once was.

For as long as I can remember, I hated having my hair or head touched. Getting my hair brushed and styled was something to endure, not enjoy. My mom loved braiding and tying my hair. I hated it. The best way I can describe it is when you get the hebbie-jeebies - being touched gave me a feeling of pain, shivers and distinct uncomfortableness. It's just a yucky feeling.

Light touch is worse than deep touch. I enjoy a rough scalp massage, like when getting my hair washed at the salon. But a soft caress gives me the most disgusting feeling. So did long hugs. It could be so bad sometimes, that it actually made me vomit.

What looks like a loving hug can feel like torture

So not liking soft kisses, caresses and other common demonstrations of affection make it look like I don't like love. When it's a child, it looks like the child hates you or finds you disgusting. It offended my mother greatly. My mom always wanted to smother me. Or at least, that's how it felt, because she didn't respect my bodily integrity.

It is always a worse (or more pronounced) sensory experience when the activity is forced upon me. So a surprise touch or one where I did not give consent is worse. In other words, a hug I did not want will feel more disgusting than a hug I want. Again, this was all much worse as a child since I could not get away from my mother. I learned to ignore my own feelings in order to make her feel happy. I will not go into the ramifications of how that sort of behaviour affects a person when it comes to interacting with other people, but I think you can guess. Suffice to say, it made me numb to some extent, and I have done things with people without feeling a thing or caring what was happening to my own body. 

My son, who seems to be my little sensory carbon copy, shows the same signs of having the same sensory issues as I do. He is a bit different, but he's not big on hugs or kisses unless it's on his own terms. If I had my way, I would just love to squeeze him and cover him with kisses, but it's not about what I want because I know what it feels to have people do things to your body against your will. This is why I always ask. ALWAYS.

The point to take away from all this, is that having a sensory issue where touch can be a problem does not mean the person doesn't want to be touched or loved. It means it feels overwhelming and weird at times and worse when forced. I am not in control of the way my body "over" reacts to stimulus. It is not conscious. It is not my fault. My body works differently and that's it. I still love touch, but it has to be on my terms.

Also, I don't have the same reactions as I did as a child. My senses are somewhat muted now. My husband is allowed and able to touch my face and head. But part of that could be because he has respected me and my body and that goes a long way.

Bodily Integrity and Children

Bodily Integrity is most often mentioned when debating abortion, but it has a major place in how I choose to parent my child.

Bodily integrity (or bodily autonomy/body autonomy) is the concept that each individual has rights to his or her own body. They have the right to choose what to do with it and who will touch it and when.

This is one of the reasons I don't believe in circumcision. It's also why I'm against piercing a baby's ears before they are old enough to ask for it themselves. By all means, if my son would like to alter his body with tattoos, piercings or even cut off his right pinky finger, he's free to do so once he's old enough to consent. As it is NOT my body, I do not have the right to alter his body unless it is a serious medical necessity.

What I want to focus on is where it concerns ALL children: expressions of affection. Often you will see parents say things like, "go give Grandma a kiss!" Whether the child wants it or not, they are usually scooped up and covered in kisses. This is extremely disrespectful and sets a precedent for abuse because it disregards the child's feelings. It tells the child that whether they like it or not, sometimes they have to accept being kissed, hugged and held by people they don't want. When you tell them they don't have a choice, that their "no" is ignored, they learn that there are times when they must ignore their true feelings and let certain things happen.

When someone tries to molest them, do you think they are good at saying "no?" It wasn't listened to before, so why would anyone listen to it now?

When they are teenagers and a boy starts trying to kiss or grope them and they don't like it - do you think they will say, "no" or will they accept that sometimes you just have to put up with these things?

This is why I always ask my son if he would like a hug or a kiss. This is why if he says, "no" I respect that and leave him alone. It doesn't matter that I'm his mom. It doesn't matter I don't have bad intentions. What matters is that he is given complete control over his own body and has the confidence to say "no" if he doesn't want someone in his space.

As a mother, it means sometimes I do not get a kiss goodnight. As a mother, it means I may go months or even years without a hug or kiss from my son, if he chooses. Because it's not about me or my body.

When it comes to parenting an Autistic child, it means he is allowed to jump, spin, flap, hum or do whatever he wants to do with his body, as long as it doesn't hurt anyone else. Because it's his body. And by hurt, I mean actually make contact with another person's body, because then that affects their bodily autonomy. Otherwise, if you don't like looking at it, don't look!

Forcing someone else to change for your benefit is not respect, and that includes forced hugs and kisses. A child, in fact any person, is able to express love, emotions and even respect without touching anyone or being touched. 

I Know Different

These two things made me cry - they are beautiful and I wanted to share them with you. 

Jodi Dipiazza sings with Katy Perry