Sensory Triggers

If you are Autistic or live with someone who is, you probably know your/their particular sensory triggers. There are lots that overlap, but everyone probably has one or two that are unique to them (since we're all unique individuals).

When I talk about sensory triggers, I'm talking about objects, sounds or experiences that can trigger sensory overload, over stimulation or meltdown/shutdown. In serious cases, it can cause seizures.

Some things can trigger someone almost immediately and others can take time to build up over the course of a day or more. It also depends on how well we were balancing ourselves prior to whatever trigger was introduced. If we are tired, hungry or sick, we'll be more fragile. Other times, there is no real predictor to how we will react.

I'm going to mention some of mine, because it took me a very long time to realize what I was experiencing was sensory overload due to very common things. It doesn't help that I didn't get a diagnosis until last year. All of this is through my own self-discovery and observations of my son.

Clothing:

When dealing with sensory issues, it seems a lot of Autistics fit into one of two camps: the clothes wearers and the strippers. Some will wear the same clothes all the time, regardless of season. Others will want to be naked, or at the very least, topless, as much as possible, regardless of the temperature.

I ran around naked a lot as a child, but grew into more of a clothes-wearer as an adult. However, I have no shame or problem being naked.

For me, clothes have specific issues. I pretty much always have socks and slippers on in the winter and must be barefoot in the summer.

I wear tight pants, but do not want anything tight around my waist. I rarely wear belts or sweaters with tight hems. I'm not a fan of tights or pantyhose.

I dislike tight things around my neck, so no chokers. I'm very specific about turtlenecks and only wear them sometimes. I will not wear itchy wool (I think that's pretty common with everyone).

Noises:

(Note: it's quite possible these are better attributed to misophonia)

Whistling makes me crazy. A shame because my husband will happily whistle a tune and I REALLY. CAN'T. STAND. IT.

Retching/burping/gagging/vomiting noises - mostly because I'm an emetophobe though. I don't think this has to do with sensory really, but it will cause a panic attack.
(I have had to get used to burping sounds since living with two males, but I still don't like it. Also, yes, China was awful for that.)

Snot sniffling - when people snuck/sniff their snot instead of blowing their nose, it drives me up the wall. Again, I live with two males who do this and I can only take so much.

I very much dislike the sound of trumpets/horns. You can instantly ruin a song for me by playing trumpet.

People chewing with their mouth open.

It could be because I see some sounds and those sounds are just gross and disgusting.

Experiences:

People breathing on me, sighing or coughing - Sometimes I feel like a target, like people go out of their way to come near me and cough. Or just walk down the street, pass me and cough in my direction. There's always some weirdo behind me in line sighing and breathing down my back. Makes me nuts!

When in bed, I cannot have my husband breathing on me - I will make him face the other way.

Crowds:

For me crowds can cause a sensory overload situation because of the movement and heat. Add to that the fact I can't predict what so many people are going to do and I find that difficult to deal with. Also, everyone is coughing and breathing all over the place. Ugh.

Pregnancy: that was pretty much one long sensory overload experience.

Fun:

It's important to remember that even too much fun can cause us to overload. It's not just things we don't like that set us off, but even too much of a good thing can overwhelm us after a while. For this reason, I make sure to intersperse fun/exciting activities with calming activities throughout the day, for my son. As he gets older, he'll be able to tolerate more, but right now he's so young, he can't regulate as effectively. Even me as an adult, I need to limit my "fun" to some extent. I can go to one party on a weekend - I'm not one of those people out Friday and Saturday nights, running from event to event. If I go out on a Friday night, I need Saturday and Sunday to recoup.

If you want, comment and add some of the things that really irritate you and send you into Overload Town.

Tracers, Auras and Other Sensory Overload Experiences

Mashable put together a nice collection of autistic/sensory overload experiences on video. Each video tries to simulate what it's like to be autistic. It's really hard to capture sensory experiences on video - it's the sort of thing where it would be great if people could just spend time in each other's heads. But since we can't, these videos are close enough.

I especially like the taking a walk and Wal-Mart visit videos. My vision does not become as blurry though. For me, I see what I call "tracers" and "auras" (and not the fancy coloured New Agey auras). Also, these experiences are not as fun as they might sound!

Auras are easy enough to describe. It's a fuzzy glowing light, a halo, around people and things. Everything.

Tracers are like a bad seventies music video where lines of light follow any movement of a person or object. So, let's say I were to wave my hand in front of my face. There would be hundreds of hands just like it, like a paper fan spreading out, following its movement.

I also sometimes see flashes of light go past my eyes. I have had my eyes checked by an ophthalmologist and I have had brain scans. There is nothing physically wrong or different to explain why I have these experiences. It's just crazy sensory overload.

Seeing either or both of them usually mean I am tired and/or over stimulated and need to get away to a quiet place quickly. If stuck, I will become dizzy, get a headache and then nauseated. My body will start to ache. This happens often in shopping malls, especially crowded ones. I cannot think straight.

Because of this, I usually stick to small stores. I do a lot of my shopping online. I also completely refuse to buy Christmas presents for anyone but children now - you will not see me in a store at holiday time! Instead I "gift" donations to charities of people's choice - again something easily done with a credit card online and I'm also doing something good. North Americans have too much stuff anyway.

Looking at me, you wouldn't think or know anything is wrong. I continue walking around like nothing is happening, maybe rubbing my eyes more than usual. I may have to concentrate more on where I'm going so I don't run into things and this might make it harder to approach me. I typically don't want my thoughts disturbed, so those people in malls trying to get you to sample something are even more annoying to me.

Add to that the annoying mall "muzzak" and scents from perfume, soap or candle shops and I start getting agitated. Basically, if I have to go to a mall, I run in and run out, getting only what I really need, so I don't get to the overload point. Knowing my limits and having them respected is really important to being able to be productive. Otherwise I could be ruined for days.

The Wiggles Final Tour

It's hard to say who wanted to see this show more - us or zee Child. Once my employment situation was settled and we got a new car, I felt safe enough to take a day off work and drive to Toronto to see them for their last tour. I had wanted to go see them in Ottawa last year, but the Little Man came down with strep throat. This would be our only chance, so I bought the tickets! 

We started driving at 8:30 Thursday night, destination Toronto. Had it just been us adults, we probably would have gotten further, but that wasn't the case. We stopped at Brockville, a little less than 2.5 hours away. It was a bit of a crazy experiment because I opted to keep the Little Man awake, thinking he would crash out by the time we arrived at the hotel. This plan did not work. He went into insane over-stimulation mode. After about an hour of wrestling upsidedown, we managed to get him to sleep. It helped that we pushed the two double beds together and had one big bed. He squished next to me all night. 

We had breakfast at the hotel and were off again by about 10am, Friday. And after one of those annoying "drive all through a middle of nowhere town to find a gas station" mistakes, we made a point of only stopping at the fancy new ONRoutes. My Mazda has a tiny tank and is not great on highway fuel efficiency, so it means we have to stop a lot more than with the Sunfire. That and having a three year old. We also had to endure hours of "go see Wiggles!" echolalia. 

Then we stopped at the Big Apple to let him feed some goats and we got to our hotel in Toronto by 3pm. The boys went swimming and I went shopping in search of child (and us)-friendly food. Us adults got sushi and in total, Hubby and I went out about three different times trying to find some option zee child would eat. He was becoming increasingly picky - which is to be expected with the excitement of travel. 

That night he had his own bed and slept just fine. He's been sleeping on Westin/Sheraton "Heavenly Sleep" beds since he was three months old! He woke up with a runny nose and sneezing, however, the poor bug. We had a lovely brunch at the hotel and then headed off to see The Wiggles. 

 They opened with Big Red Car

Anthony about to do a hand stand! Far out!

Hubby and I got a huge kick out of The Wiggles. The Little Man was over-stimulated and congested, however. These guys are amazing. They're like 50 years old and doing hand stands and flips. It's like freakin' Cirque du Soleil, they have ropes and poles to swing on. It was nuts. They are funny as all hell, cracking jokes about "happy endings" and stuff like that. They were cracking up on stage, making fun of each other. They have mics on the whole time, so you hear *everything*, including their out of breath huffing and puffing. But they sing, they dance, they play their own instruments and they seemed to be having a really good time. 

About 45 minutes in, the Little Man started getting weird and I had to pee anyway, so we took him out to walk around and see how he was doing. We got out and he put his hands over his ears and said, "too loud." We asked him if he wanted to go back in and he said no. This made me very sad because this was the reason we came to Toronto and I *really* wanted to see The Wiggles. I mean, dude, I know all the words to all their songs, plus the hand movements! *sigh* But I had to put on my big girl panties and leave for the sake of my child. 

So we got back in the car and he was like, "go see Wiggles!" I said, "we just saw The Wiggles and you wanted to leave."

"Oh," he said. Oh indeed, my child. 

My son's fave song, Twinkle, Twinkle, Little Star, performed by The Wiggles

Tie Me Kangaroo Down by The Wiggles