Showing posts with label awareness. Show all posts
Showing posts with label awareness. Show all posts

October 15, 2015

Pregnancy and Infant Loss Remembrance Day

It seems a lot of things are commemorated in October. It is Pregnancy and Infant Loss Awareness Month, but October 15th is the actual date. If you visit the link, they encourage everyone to light a candle at 7pm and create a wave of light.


Four Pictos of women, three pink and one black with text that says, "1 in 4 is not just a statistic. It's me. Speak out about pregnancy loss. Found on OneQuarterMama.ca.
Four Pictos of women, three pink and one black with text that says, "1 in 4 is not just a statistic. It's me. Speak out about pregnancy loss. 

I think it can be a time to acknowledge the difficulties some people have. I think it's a good time to share our stories and say the names of our lost children out loud. So many people suffer in silence because they don't feel they are allowed to grieve and talk about it.

I've written many times here about miscarriage and I want people to keep talking so that they know they're not alone.

Not only should we let others know they are not alone, we need to change the dialogue about the value of women. There are so many ways to mother without giving birth. The ability to get pregnant has no bearing on your value as a person. Too often people blame themselves and say they are "broken," "not meant to be mothers," or "not womanly enough." That's simply not true.

We shouldn't be taught that motherhood defines our worth. When we get rid of that rhetoric, we can have more equality of the sexes, as well as more respect for the childfree.

When we allow our vision of what motherhood is to expand and see the many forms it can take, our children benefit as well.

So as we mourn our losses, let's see what we can do to lighten the burden for everyone:

1) Stop teaching young women that their worth is tied up in their ability to reproduce
2) Stop making judgement calls on the characters of those who choose to be childfree
3) Make space for everyone (women and men!) to grieve their pregnancy and infant losses freely

Share your stories. Say their names. You are not alone. 

We remember the babies born sleeping, those we carried but never held, those we held but could not take home, those who came home but could not stay.


September 12, 2013

Awareness Vs Acceptance

I'm a Linguistics major. I love languages. I love the nuances of semantics. When I went for ASD testing and I told the psychologist what my major was, she said, "interesting!" Not all of us are polyglots and language geeks, but a great many Autistics enjoy the sounds of language and the precision of using the right word at the right time. I don't embellish - I use just enough precise words to get my point across, without any extra hidden meaning. If I say, "some," I really mean "some" and not "all" or "many." Neurotypicals misunderstand often because they don't understand the distinction between the two and have a tendency to infer emotion into things I never said.

All that to say, words and meaning are very important. I am happy to "fight the good fight" when it comes to advocacy, but I want to make sure I am fighting the right fight for me and my fellow Autistics.

One of those fights is the difference between "awareness" and "acceptance." Groups like Autism Speaks are interested in bringing "awareness" to autism, most often in a negative way - the numbers of diagnoses, and research for prevention and cures. They, and many other groups, want to bring awareness to their cause - if only you donate more money, autism can be eradicated!

I don't want to be cured or eradicated, thankyouverymuch, so I'm more interested in fighting for "acceptance."

I'm asking for societal acceptance of people who are different.
I'm asking for societal acceptance of people who think or move differently.
I'm asking for societal acceptance of people who may need assistance to complete daily tasks.
I'm asking for societal acceptance of people who may not speak.
I'm asking for societal acceptance of people who are Autistic.

We don't usually look all that different from you, but we sometimes stick out in odd ways. We may have ticks. We may communicate differently. Regardless, the major point is we're not HURTING anyone.

Feel free to stare, but don't try to change us.
Feel free to be confused, but don't try to cure us.
Feel free to misunderstand at times, but don't try to kill us.

Eventually, hopefully by the time my son is an adult, people won't be staring so much. People will see the person humming to themselves on the bus and not think any ill thoughts. Humming is not dangerous. Flapping is not dangerous. Smiles should not evoke fear in your heart. Spinning is not life-threatening. We are not contagious.


We don't need more awareness. You notice us. You see us everyday. What we need is acceptance.

I have a right on this earth just as much as you do. I choose every day to respect and accept the people around me. Please start accepting us for who we are.